Bay Area Couple Raises Funds To Research Rare Genetic Disorder That Causes Blindness And Deafness

CBS San Francisco

March 1, 2023

SAN RAFAEL, CA --Two Bay Area parents have created a global organization that is raising funds to research a genetic disorder that robs children of their sight and hearing.

Marin couple Rosalyn and Justin Porcano created the global organization called Save Sight Now. The nonprofit helps fund research for one of the leading causes of childhood deaf and blindness, Usher syndrome type 1B or USH1B.

The inspiration is driven by a small but mighty force—their four-year-old daughter Lia.

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