Town Council Hopes To Raise Awareness On Cornelia de Lange Syndrome

NORTH BRANFORD, CT — Mayor Rose Angeloni and Town Manager Michael Downes joined with North Branford’s Ashley Fernandez, regional coordinator for the CdLS Foundation, and her daughter Lindsey, who was diagnosed with CdLS at the age of 18 months, to promote awareness about CdLS.

Angeloni and the North Branford Town Council issued a proclamation declaring Saturday, May 11, as International Cornelia de Lange Syndrome Awareness Day in North Branford.

Cornelia de Lange Syndrome is a little-known genetic disorder causing children to be born with a low birth weight, develop slowly cognitively and physically, and experience numerous medical complications. An estimated 30,000 men, women and children in the U.S. have CdLS and are undiagnosed or are without support services.

Cornelia de Lange Syndrome is a genetic disorder that affects children from low birth weight to cognitive/physical challenges and medical complications.

"North Branford is proud to join in the national effort to promote awareness of CdLS and to seek positive and productive impacts on the lives of people with CdLS and their caregivers," Downes said.