Health & Fitness
Family Raises $100,000 To Help Find A Cure For Daughter Born With Rare Genetic Disease
Lucy Hieb was born with CTNNB1, which can impact every aspect of her life, and many who have it aren't able to live independently as adults.
February 12, 2023
A Lakeville family has raised more than $100,000 to help find a cure for a rare genetic disorder their daughter was born with.
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Lucy Hieb was born with CTNNB1, which can impact every aspect of her life, and many who have it aren't able to live independently as adults.
"We've really learned to accept the now and live in the present and celebrate the little wins," said Charlie Hieb, Lucy's father.
Find out what's happening in Across Minnesotafor free with the latest updates from Patch.
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