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Minneapolis To Light Up Green In Honor Of International Myotonic Dystrophy Awareness Day

"We were asking doctors, 'How long this will last, will she walk, will she be able to go to school?'" Lauren Zabezhinsky said.

(Jonah Kaplan, CBS Minnesota)

September 16, 2024

MINNEAPOLIS Leo and Lauren Zabezhinsky's joy of welcoming their new daughter, Jackie, was soon met with a jarring discovery: baby Jackie wasn't moving well and couldn't swallow.

Find out what's happening in Across Minnesotafor free with the latest updates from Patch.

"Sometimes in life we all get dealt a hand that things happen unexpectedly," Leo Zabezhinsky said. "But it's not about what happens — it's about how you respond and how you react."

Jackie Zabezhinsky would spend two months at the NICU at Children's Minnesota and then underwent testing and treatment for nearly a year before doctors diagnosed her with myotonic dystrophy, a rare genetic muscle disease.

Find out what's happening in Across Minnesotafor free with the latest updates from Patch.

Zabezhinsky family/CBS Minnesota

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