Minnesota Gene Therapy Research Saves The Life Of Michigan Boy With Rare Terminal Illness ALD

By Susan-Elizabeth Littlefield, CBS Minnesota

November 15, 2022

There has been a breakthrough for boys who have a terminal illness called adrenoleukodystrophy, or ALD - and it's all thanks to the work of some dedicated Minnesota researchers.

One in 20,000 boys in the U.S. is born with ALD, a disease that causes them to slowly lose sight, mobility and speech.

Priscilla Veneklause knows all about ALD. The Grand Rapids, Michigan, resident has been through a lot.

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