Community Corner

Golf Classic At Colts Neck Course Will Help Duchenne Research

JAR of Hope will have a golf outing Sept. 13 in Colts Neck to benefit research into Duchenne Muscular Dystrophy, which strikes mainly boys.

Jim Raffone pictured with his son James. Raffone and his wife Karen Raffone established the JAR of Hope organization 10 years ago to fund research into Duchenne Muscular Dystrophy.
Jim Raffone pictured with his son James. Raffone and his wife Karen Raffone established the JAR of Hope organization 10 years ago to fund research into Duchenne Muscular Dystrophy. (Photo provided by JAR of Hope)

COLTS NECK, NJ — JAR of Hope’s third annual Invitational Golf Outing to help fund Duchenne MD research takes place at Trump National Colts Neck on Wednesday, Sept. 13.

JAR of Hope raises funds to research a cure for kids with an extremely-rare childhood disease, Duchenne Muscular Dystrophy – and it’s so rare that only 17,000 kids in America (mostly boys) have it.

The golf outing will see substantial prize-money for the winning team and for individual golfers, organizers say.

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And the unique 50/50 Golf Ball Drop "means someone will walk away with a much fatter wallet than when they walked in," they add.

“Last year’s golf outing was a very special event, for both the golfers and these kids,” says Jim Raffone, Founder/CEO of JAR of Hope. “We raised over $200,000 to fund research on a cure for Duchenne MD. And we’re delighted to have a great co-host in Alliance Orthopedics back again this year.”

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The winning team will walk away with $13,000, and individual awards (longest drive, etc.) go up to $2,500.

For the special 50/50 Golf Ball Drop, a helicopter will drop golf balls on the 19th Hole, and the one closest to – or in – the hole, will win half the pot.

The pot is already over $27,000 - and still rising. And you don’t even have to attend the event to participate.

Jim and Karen Raffone started JAR of Hope, based in Asbury Park, 10 years ago, after their four-year-old son James Anthony (“Jamesy”), was diagnosed with Duchenne MD. Their reason was simple - to raise funds to research a cure for this disease that takes children away.

“We’re honored to continue our partnership with JAR of Hope to host a great charitable event,” says Nick Bufano, CEO of Alliance Orthopedics. “And we’re committed to treating Jamesy Raffone and other children with DMD, and to provide their families with the resources they need.”

Registration and lunch start at 11 a.m. on Sept. 13, and the day ends with a dinner/awards ceremony. There are nine corporate or personal sponsorships available.

Pre-registration for all activities is at https://www.jarofhope.org/invitational.

“It’ll be a great day for golfers and for attendees,” Jim Raffone says. “And we’re hoping community support will turn it into a day of great joy for families confronting Duchenne Muscular Dystrophy.”

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