Families Holding Final OI Unbreakable Spirit Walk Saturday

A decade ago, the Wyman, Rossi, and Portorski families started the Massachusetts Unbreakable Spirit Walk and Family Fun Day. Since then, they have raised more than $550,000 to help find a cure for Osteogenesis Imperfecta.

On Saturday, June 6, the families will hold their final Walk for OI. The public is invited to the final event at Framingham State University’s Maple Street Field from noon to 3 p.m.

The “family fun day” will have live entertainment, food, raffles, silent auction tables and many kid’s events that include races, games, sand art, face painting, and much more

In 2005, the MA Walk for OI began after Jack, 10, and Sienna, 11, were born with the disease.

Osteogenesis Imperfecta is characterized by fragile bones that break easily. It is also known as “brittle bone disease.” A person is born with this disorder and is affected throughout his or her life time

Jack’s mom Christine Wyman Rossi has the disease, too. The genetic disorder has affected at least 5 generations of her family.

After the success of their first 10 events, the families have decided to hold their final MA Walk for OI as a way to say thanks to all those who have volunteered tirelessly, walked enthusiastically, donated generously, raised awareness and money faithfully, sponsored and supported them in every way, attended either religiously or occasionally or just loved them as they walk this life’s journey as an OI family.

The founding members of the walk are Jack’s parents, Christine and John Rossi, grandparents Dick and Mary Ellen Wyman, and Siena’s parents, Michelle and Mike Potorski.

Individuals who have OI sometimes need multiple surgeries to try to correct bone deformities and straighten bones so they can live independently.

Recent research has developed new treatment options which have greatly improved the quality of life for members of the OI community.

Money raised from the final OI walk will support the OI Foundation.

If you would like to support the cause, but can’t stop by the 3-jour event on Saturday, click here to make a donation.

Almost $4,500 has been raised thus far this year.